Sean Dorney was the ABC’s long-time correspondent for the Pacific covering coups, elections and conflict.
When he was 66, he was diagnosed with motor neurone disease or MND.
If he had been diagnosed just two years earlier, he would h ave fallen under NDIS and could have received roughly three times more funding. Under the aged care system, he receives just 12 hours of care a week.
But because he needs two carers at a time, he can only afford for them to help shower, dress and feed him three times a week.
More funding is available, but Sean and his wife have now been waiting eight months just to get reassessed.